October 24, 2022
Told you he was a genius!
Max is off to Oxford University to take part in a Natural history study undertaken by the Specialised Translational Research Oxford Neuromuscular Group (STRONG) team of the Muscular Dystrophy UK Oxford Neuromuscular Centre (MDUK), Department of Paediatrics, University of Oxford. The Chief Investigator is Professor Laurent Servais, Professor of Paediatric Neuromuscular Diseases at
the University of Oxford, and the Principal Investigator is Dr Usha Kini, Consultant Clinical Geneticist at Oxford University Hospitals NHS Foundation Trust.
Max is 1 of 40 participants to take part along with his parents to aid the research.
The objectives of the research -
and last but not least to connect with families impacted to teach the team more about Angelman syndrome.
This initiative is supported and funded by FAST UK and as a foundation we are proud to help raise funds for FAST UK.