be strong

be brave

be happy

be like Max

Welcome to the Max Ward Foundation

Set up by Max’s parents Adam and Rebecca, Grandparents John and Sylvia, and the foundation’s trustees following Max’s diagnosis of Angelman Syndrome.

Our Objectives


To relieve the needs of those with Angelman syndrome and their families


Supporting those with additional needs, their families, carers and wider support services


To promote research into Angelman syndrome and rare genetic conditions


The Foundation

The foundation has been setup not to support Max but as a way for the trustees and Max to give back to the Angelman and wider community.

About Max

Anyone lucky enough to meet Max or spend time with him knows he's always happy. Angelman impacts everyone differently, we're all learning so much.

My son is not his diagnosis. We will help him achieve all that he can and completely disregard everything that doctors said he cannot.

Angelman Syndrome

Angelman syndrome (AS) is a rare neuro-genetic disorder that occurs in one in 15,000 live births or 500,000 people worldwide.

Individuals with AS will require life-long care, but will live long, happy lives.

Disabled does not mean ‘can’t do’ assume competence and focus on what you can do and learn.

The Future for AS

The foundation has been setup not to support Max but as a way for the trustees and Max to give back. The Scientists believe that Angelman Syndrome has the greatest potential for being cured when compared to other neurogenetic disorders. Funding research is critical to help finding a cure one day.

Max is taking part in in a Natural history study which is supported and funded by FAST UK and as a foundation we are proud to help raise funds for FAST UK, Angelman and wider community.

How We Can Support

The Max Ward foundation was created to provide financial assistance to families supporting individuals with Angelman syndrome. Family members can apply for support to improve the quality of life for an individual with Angelman syndrome.

There are eligibility, limitations and conditions for support but please contact the trustees for more information.

Angelman syndrome, a different kind of perfect.

How you can support

To donate to the foundation please contact the trustees.

The Blog