Set up by Max’s parents Adam and Rebecca, Grandparents John and Sylvia, and the foundation’s trustees following Max’s diagnosis of Angelman Syndrome.
To relieve the needs of those with Angelman syndrome and their families
Supporting those with additional needs, their families, carers and wider support services
To promote research into Angelman syndrome and rare genetic conditions
The foundation has been setup not to support Max but as a way for the trustees and Max to give back to the Angelman and wider community.
About the Foundation
Anyone lucky enough to meet Max or spend time with him knows he's always happy. Angelman impacts everyone differently, we're all learning so much.
Get to know Max
My son is not his diagnosis. We will help him achieve all that he can and completely disregard everything that doctors said he cannot.
Angelman syndrome (AS) is a rare neuro-genetic disorder that occurs in one in 15,000 live births or 500,000 people worldwide.
Individuals with AS will require life-long care, but will live long, happy lives.
About Angelman Syndrome
Disabled does not mean ‘can’t do’ assume competence and focus on what you can do and learn.
The foundation has been setup not to support Max but as a way for the trustees and Max to give back. The Scientists believe that Angelman Syndrome has the greatest potential for being cured when compared to other neurogenetic disorders. Funding research is critical to help finding a cure one day.
Max is taking part in in a Natural history study which is supported and funded by FAST UK and as a foundation we are proud to help raise funds for FAST UK, Angelman and wider community.
The Max Ward foundation was created to provide financial assistance to families supporting individuals with Angelman syndrome. Family members can apply for support to improve the quality of life for an individual with Angelman syndrome.
There are eligibility, limitations and conditions for support but please contact the trustees for more information.
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Angelman syndrome, a different kind of perfect.
