About the Foundation

The foundation has been setup not to support Max but as a way for the trustees and Max to give back to the Angelman and wider community.

May 20, 2022 was a day that changed all our lives forever. Angelman Syndrome is caused by the loss of 1 of over 29,000 genes each human has but leaves thousands more.

Max won't be defined by AS.

Our Objectives


To relieve the needs of those with Angelman syndrome and their families


Supporting those with additional needs, their families, carers and wider support services


To promote research into Angelman syndrome and rare genetic conditions

About Max

Anyone lucky enough to meet Max or spend time with him knows he's always happy. Angelman impacts everyone differently, we're all learning so much.

Angelman Syndrome

Angelman syndrome (AS) is a rare neuro-genetic disorder that occurs in one in 15,000 live births. Individuals with AS will require life-long care, but will live long, happy lives.

Angelman syndrome, a different kind of perfect.

How you can support

To donate to the foundation please contact the trustees.

By clicking “Accept All Cookies”, you agree to the storing of cookies on your device to enhance site navigation, analyze site usage, and assist in our marketing efforts. View our Privacy Policy for more information.